We are the national charity (Registered Charity Number 1191342) supporting those affected by Congenital Disorders of Glycosylation (CDG). Partnered with the UK Genetic Disordered Partnership Network, we support UK patients and their families living with CDG. CDG UK was set up in 2013 by parents of children living with CDG. We are driven by a passion for creating a brighter future for individuals with CDG. Our organisation is founded on the principals of compassion, innovation and inclusivity.
Compassion
Compassion is at the heart of the CDG UK ethos, with family outreach and community events being a main feature within our charity's activities. We host an annual family weekend, regular fundraisers, and provide grants to families within our growing network.
Innovation
CDG UK is proud to collaborate with research bodies, and help fund innovative research into potential cures and treatments for Congenital Disorders of Glycosylation, and spread awareness of these rare disease states through our social media channels.
Inclusivity
The CDG family is growing every year, and we warmly welcome all families from all backgrounds and from any one of the 180+ CDG subtypes. CDGs may be rare, but you are not alone!
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CDG UK operates globally, with a focus on raising awareness and funding for Congenital Disorders of Glycosylation (CDG). Our work extends across the UK and beyond, reaching individuals and families affected by CDG in various regions. We strive to make a difference by supporting research, providing resources, and advocating for better care and understanding of CDG.